Look What the Easter Bunny Brought Carter…

….among other things. Around noon we took Carter to the ER because he had a terrible headache, couldn’t look up and started throwing up. It’s 6 now and we have come to find out that he has a raging infection. They have it off to the labs to decide how to treat. The infection is probably just a symptom though of something else going on. He and I are staying overnight in the observation unit of the ER. They will run more tests in the am to determine the possible causes. I will update when I know more.

He goes from feeling fine to feeling sick pretty quickly so it is easiest for me to just update the blog rather than take phone calls.

In light of this I won’t be posting for PR Monday tomorrow nor will I be holding the PR Monday Chat planned for tomorrow night. I am sure you all understand.

Update 1: It’s about midnight. They ran one round of IV antibiotics through. He seems to be feeling much better. He is keeping food down. Going to try to get some sleep if the crying baby in the next room would kindly cooperate. Lot’s of tests in the AM.

Update 2: It’s 7am. Carter and I were able to sleep for about 5 hours. I had the pleasure of sleeping on something that resembled a 4*4 piece of plywood covered in plastic. I thought the beds in the rooms were bad. This is like an ancient torture board. But, remembering many nights in Phoenix sleeping in a ER room with 4 other families and a plastic chair, I am grateful for the private room with a plywood bed. He woke up happy and feeling good. The neurosurgeon resident just said that they don’t feel he is in any immediate danger. We need to wait and see the NS when he comes in to find out what tests we are going to run to find out what caused this.

Update 3: We are home. No definitive cause on the infection. He has some heavy duty antibiotics for the next few weeks. Hopefully that will kill the bugs and get everything back to normal.

I am exhausted so I think I will check out for a little. I expect that he will get sick from the antibiotics. I know that last time when he had a staph infection those pills made him sicker than the infection.

Thanks to all for your comments. Love ya!


Quick Note

shortstory(1)Just wanted to throw something quick up to say thanks for all the calls, emails, and notes for Carters surgery tomorrow. If all goes as it should this will be a super quick shunt replacement and we should be home Tues. afternoon.

I will update everyone through a whrrl story so you can follow that in any of these ways.You only need to do one of them to get the updates.

  1. Sign up for an account there and add me as a friend: http://whrrl.com/ If you do this, you will get an email everytime I publish a new story.
  2. Check the front of page of the blog for my latest whrrl story which over the next two days will be updates on how he is. Keep hitting refresh–it is good for my stats (hee hee)

and with that I am going to bed and leaving you with one cute Carterism:

Me: You are the cutest kid ever

Carter: Yeah, you can take that to the bank!

Welcome to Holland

One of my amazing friends whom I have never actually met in person is going through the very difficult loss of a little boy with spina bifida. Years ago I started an international support forum for people with spina bifida. I met my friend here. We emailed back and forth for years, we kept in touch when I had to shut down the board temporarily, I sent her stuff to help her son that they do not have in Northern Africa, we ‘speak’ weekly :) No, thank God, it was not her son. My friend is a support contact in her own right in her area where information about spina bifida is not so readily available. She is a source of inspiration to mothers all around her area who come to her for help and advice. It was one of these little boys that she has helped and loved. She remembered this poem (story?) and asked me to send it to her for the family. It reminded me that I should share it again for all the moms (and dads) for whom the birth of their child did not turn out quite the way they expected. It is one of my favorite stories of all time and it makes me smile and cry every time I read it.

WELCOME TO HOLLAND


by
Emily Perl Kingsley.


I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……

When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, “Welcome to Holland.”

“Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”

But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.

The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”

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