The Big Day Is Finally Here!

No, not my birthday-that is Thursday, silly. Which means you totally have time to get a present overnighted at this point.

I meant- It’s moving day…

Having a blog is a lot like having a party at your house. Except you never know when someone is going to drop in. Which means you sort of have to keep it ready for guests at anytime.

And just like your house, after a while the walls need a fresh coat of paint, the weeds need to be pulled and it probably wouldn’t hurt to clear out some of those junk drawers.

Can you believe I have been blogging now for 5 years? What started out as a way to update family has certainly taken me on a roller coaster ride in that time. That metaphor is totally intended by the way.

Sure, I have been playing around online creating, running, selling sites for the last 12 years as I went about my merry way but my little blog? Pretty much always been my quiet space to just write and talk about the kids.

But a funny thing happened in all those years. My kiddos sort of grew up. My youngest will be a teen very soon and my oldest, driving. And remember how mortified you were by the fact that your parents dared to breathe as a teenager? Well, multiple that by about 1 million times and you may have an idea of how embarrassing it is to have all of this history online about them. I am assured I am quite literally ruining their lives…and apparently I am a little creepy too?

Mom Off Track New LogoSo, dear friends, we are packing up and moving on. No, not just me….you too! The boys are mortified that 1000’s of strangers know that they like their names spelled out in tater tots and that they were completely satisfied that I got rid of all the monsters under their bed by using lavender air freshener. What they don’t realize is that you are not strangers at all. You’re my friends from all over the world. You’re not creepy stalker people AT ALL! Well, not all of you anyway.

So, grab a box—and not just a light one—we have people to see and things to do, and there is something fun already waiting for you! *sounds creepishly like Dr. Seuss, doesn’t it?* Whatever. Get yourself on over to Mom Off Track and check out the new digs with fabulous graphics done by Chris Bird. While you are there, sign up for the new feed and please ‘like Mom Off Track’ on Facebook.  Mom Off Track has a mobile version too! See you soon!

Proud Owner of An Ugly New Car

I know, you are all tired of me writing about the great car hunt. But it is over and I don’t want to leave you hanging….

Not exactly a thing of beauty in my eyes. It is one of those car styles that you either love or hate. I happen to not be super crazy about the boxy style but I am super crazy about how well this fits a wheelchair user with little to no modifications. We will be installing a flip down transfer seat like this just to make it as safe as possible. We don’t have a cost yet on the transfer board but I am pretty confident it will fit in the $1200 budget Ford gives for after market mobility aids.

Available from In CO ADAPTIVE AUTOMOBILITY can install

I was completely in love with the Buick Enclave but after talking with after market mobility specialists found that it would be impossible to convert to a drop out, swivel seat which Carter would need due to seat height.  One person thought they might be able to but it would be more than the typical $8,000 cost to modify a seat to turn and come out of the car.

The Flex seating is 6 inches lower than the Buick. It doesn’t sound like much to non wheelchair users but when you are transferring you really want to not have any height difference. There is only an 1 1/2 inch difference from his wheelchair.

What the Flex lacks in outer beauty, it more than makes up for inside.

Not exactly roughing it


I am really liking the Ford My Touch Navigation with Sync. It is similar to the Yukon we already own On-Star system. There are things I like about both. I think On Star makes me feel safer with the installed satellite phone but the My Touch has some pretty nifty features, like the ability to recognize up to 5 phones through Bluetooth and sync them all with the car.

I think I will miss driving my Yukon but it is still in the family here with a teenage driver about to hit the roads (dear lord help us all) and I do wish that the Enclave would have worked because it really is a sexy beast of a car. But this car is all about making life easier and safer for Carter and the Flex does that in amazing comfort at a great price.

If you are in CO and looking for a car, both MedVed in Castle Rock and Groove on Arapahoe were extremely helpful to us. GM was more than generous in offering us special pricing but ultimately the Flex and Groove won out because they were just better fits for us personally. I would recommend dealing with Keith or Kyle at MedVed and Jon at Groove.

I am grateful this is done. I did a ton of research online to make this decision and talked to lots of owners which is why I want to share our choice.  I have never found anyone that actually owns one that doesn’t love either the Flex, the Traverse, or the Enclave. A lot of people in the disability community are looking more to the Flex for good reason. It is a good option for people that have the ability to level transfer. It has huge doors and low seats but doesn’t have that ‘adapted’ feel.

Special Needs Consumption

The word CONSUMPTION is often used as an old fashioned way of describing someone with Tuberculosis.

In the past, tuberculosis has been called consumption, because it seemed to consume people from within, with a bloody cough, fever, pallor, and long relentless wasting.-wikipedia

and while most of us think of images of Little House on the Prairie or Deadwood when the word consumption is used, I would like to suggest that it is alive and well and sadly, taking its toll in a new form with special needs parents everywhere.

I know I have this new form of consumption.

Carter has been on and off bed rest for close to a year fighting a wound in his leg that appears to have super bugs attached to it because nothing is killing them. This past year our whole family has been consumed by this.

Special Needs Consumption is easy to contract and difficult, if not impossible, to cure. You are often first struck with it the first time you hold your babies hand through something horrific. The first time you whisper ‘it’s ok’ when you know it might not be.

Sometimes SNC (Special Needs Consumption) goes into remission. Yes, there are those brief times that you don’t think about your childs condition, their needs, their appointments, their schedules, their equipment….but these remission times rarely last long. Consumption is a powerful thing and will bring you back to reality quickly.

But what can parents suffering with SNC do to bolster their own strength? That is personal to each afflicted member, my friend Tammy takes long walks around the grocery store alone, my friend Laura took a huge leap of faith and decided to go on a professional writing retreat, and me, I am going to meet a giant mouse in FL this weekend to work and play.

I’m feeling guilty about taking off two weeks after Carters surgery. But yet, his 1 week check up yesterday went amazingly well. There is nothing I can do for him other than entertain him while he is on bed rest and quite frankly, after a year of that, I am not that entertaining. But through the guilt I see that if I don’t put my SNC into remission for a few days, I might drive off a cliff soon. I know everyone here will be fine without me, they always are and I would never go if I thought anything might be even slightly wrong. So, I need to kick this Consumptions butt for a little bit and let myself heal!